EL-Ezaby Pharmacy partners with Forset Hayah to support Spinal Muscular Atrophy(SMA) patients

EGYPT—EL-Ezaby Pharmacy, a prominent  pharmaceutical care company in Egypt, has collaborated with Forset Hayah, a non-governmental organization dedicated to supporting children affected by rare diseases.

This partnership aims to provide essential medications and comprehensive care to patients suffering from Spinal Muscular Atrophy (SMA), a severe genetic disorder.

The collaboration brings together EL-Ezaby Pharmacy’s expertise and Forset Hayah’s resources to ensure that patients receive the necessary treatments without financial burden.

 EL-Ezaby Pharmacy will dispense the medication, while Forset Hayah will provide funding for these life-saving treatments.

By pooling their resources, both organizations aim to ensure that patients and their families have access to the care they need, customized to their specific circumstances.

A key objective of this partnership is to ensure consistent and reliable access to medications for SMA patients.

 EL-Ezaby Pharmacy will act as the distribution hub for these critical treatments, guaranteeing a steady supply to prevent any interruptions in patient care.

This system is designed to help patients continue their treatment seamlessly, ensuring that no child’s health is compromised due to delays in receiving medication.

In addition to distributing medication, the partnership emphasizes the importance of providing patient and caregiver guidance.

EL-Ezaby Pharmacy will offer detailed instructions on properly administering the medications, ensuring that treatments are used safely and effectively.

This support extends beyond the initial dispensation, as the pharmacy team will remain accessible to answer questions and address any concerns that may arise during treatment.

The partnership also focuses on continuous communication and care, which will involve EL-Ezaby Pharmacy maintaining regular follow-ups with both patients and caregivers.

 This ongoing support will reassure families, as they can access professional advice whenever needed.

Ammar Aklan, CEO of EL-Ezaby Pharmacy, expressed his pride in collaborating with Forset Hayah, stating that this partnership highlights their commitment to supporting children with SMA.

 “We are honored to work alongside Forset Hayah in delivering life-saving treatments to these children. Every child deserves the opportunity to lead a healthy and fulfilling life, and we are committed to providing ongoing care and support to help them achieve this,” Aklan said.

Ms. Ghada Mounib, Chairman of Forset Hayah, echoed these sentiments, emphasizing the partnership’s transformative nature.

“By working with EL-Ezaby Pharmacy, we are not only providing medication but also offering the guidance and follow-up that truly makes a difference in these children’s lives,” she stated.

Ms. Mounib added that their joint efforts are giving children with SMA the chance to lead healthier, happier lives, bringing hope to families affected by rare diseases.